“Will I be able to continue living the way I do now?”
Lately, this thought has been running through my mind more often.
It has been over ten years since I became severely disabled due to a sudden illness. After undergoing rehabilitation, I managed to return to work and regain a certain level of independence in daily life. However, as I grow older, I have started to notice changes in my body. The decline in function on my paralyzed side, concerns about my ability to drive safely, and the risk of cognitive impairment—these worries are becoming more real with each passing day.
Despite these concerns, I have a strong desire to keep working.
I want to continue for my sense of purpose, to stay connected with society, and above all, to minimize the burden on my loved ones while maintaining a life that feels true to myself.
In this article, I want to share my honest thoughts about the physical and mental changes that come with aging as a disabled person and how I plan to cope with these challenges to continue working.
The Fear of Losing My Abilities with Age
The Decline in Function on My Paralyzed Side – Tasks That Were Once Easy Are Becoming Harder
When I first became disabled, I worked hard in rehabilitation to regain the ability to walk, drive, and carry out daily tasks independently. However, lately, I have started to notice moments when my leg doesn’t move as smoothly as before or when I feel unusually fatigued.
What worries me the most is that these changes happen gradually.
“Today, I don’t feel as strong.”
“Maybe I’m just tired.”
I try to brush it off, but deep down, I know that one day, these minor inconveniences might turn into a major functional decline. If that happens, will I still be able to maintain my current lifestyle? This thought lingers in my mind.
The Risk of Cognitive Decline – The Fear of Becoming Someone I No Longer Recognize
For now, I don’t have any significant symptoms of cognitive impairment. However, compared to before, I sometimes struggle to recall things, find the right words, or maintain concentration for long periods.
Is this just part of aging, or is it the beginning of cognitive dysfunction? I can’t say for sure.
But if it progresses, then—
“Will I be able to keep working?”
“Will I be able to drive safely?”
“Will I still be able to manage my daily life?”
These concerns are always at the back of my mind.
Why I Want to Keep Working
Given these fears, some might say I should reduce my workload or retire.
But for me, quitting work is not an option.
Because working gives me a sense of purpose.
1. I Want to Stay Connected with Society
When I first became disabled, the hardest part was feeling disconnected from society.
Returning to work after rehabilitation gave me a sense of being needed and helped me regain my self-worth.
If I stop working—
I will have fewer opportunities to interact with people, and eventually, I might start feeling like I no longer have a place in society.
This is why staying employed is so important to me.
2. Financial Independence Is Important
Yes, there are disability support programs available. But for me, earning my own income is meaningful.
Working allows me to buy things I enjoy, travel with my family, and secure a stable life.
More than that, the act of providing for myself keeps me motivated and mentally strong.
3. I Want to Reduce the Burden on My Family
I don’t want to place too much burden on my loved ones.
Of course, it’s important to accept help when needed, and I don’t intend to push myself beyond my limits.
But at the same time, I want to maintain as much independence as possible for as long as I can.
Continuing to work is one way to achieve that.
How I Plan to Keep Working – Strategies and Adaptations
Living with fear won’t solve anything.
To keep working for as long as possible, I have thought about specific measures to take.
1. Prioritizing Physical Care
Making daily stretching a habit
Continuing light exercise to maintain muscle strength on my paralyzed side
Consulting specialists and receiving professional advice when necessary
2. Ensuring Safe Driving
Taking breaks whenever I feel fatigued
Considering adaptive driving equipment for better control if needed
Using a dashcam to monitor my driving habits and detect any changes in reaction time
3. Preventing Cognitive Decline
Engaging in activities that stimulate the brain, such as reading and simple math exercises
Having regular health checkups to detect changes early
Adjusting my work style to reduce excessive cognitive strain
Conclusion – “Working Is a Part of Who I Am”
There is no way to completely avoid the physical changes that come with aging.
But I believe it is possible to continue working by adapting and making adjustments.
Yes, I have fears.
But quitting work would only amplify those fears.
That’s why I am determined to keep taking measures that allow me to work as long as I can.
Because having a job gives my life meaning and structure.
Because working allows me to remain myself.
If you are facing similar fears, I would love to hear your thoughts.
If you have any strategies or experiences that help you manage aging with a disability, please share them in the comments.
Your insights might provide encouragement to someone else going through the same struggles.
障害者雇用で「仕事を切り出す」だけでは足りない
――元課長・中途重度障害当事者が考える「人を活かす仕事の再設計」
障害者雇用で「仕事を切り出す」だけでは、本当の人材活用にはつながりません。健常者時代に課長を…



















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